I’ve watched a good friend of mine Alyssa (not her real name) blog and post on her social media for several years. I met her before my son was born through digital scrapbooking community. A few years she started experiencing some scary health issues.
She has a number of autoimmune disorders that:
-Doctors don’t really know how to treat individually
-The disorders work against each other
-Doctors most definitely do not know how to treat collectively
-Most importantly, there is no cure.
She never talked about that last thing. She’s the awareness warrior educating her people about the disease. If there’s a way to fight it and beat it, she’s going to do it. She’s that person. She’s researched everything. She kept detailed notes about every conversation, treatment, next steps, worst and best case scenarios, and some new something that she could tell her people about.
I would reach out every once in awhile and ask how she’s doing and she would launch into her current dialogue on her health… I …
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